Table of Contents:
Quote of the Day
You asked. We listened. Here’s what’s next…
Interesting Stories This Week
Finding Purpose Through Movement: Inspirational Stories – Part 2
Responding to YOU!
Do good for others. It will come back in unexpected ways.
You asked. We listened. Here’s what’s next…
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Interesting Stories This Week:
Judi Dench Is Right- Dementia Diagnoses Can Take 'Far Too Long'
Neurologist says very common drug increases dementia risk by a third
Dementia Defense: 4 Surprising Ways To Prevent Alzheimer’s
Finding Purpose Through Movement: Inspirational Stories – Part 2
A dementia diagnosis often changes life in ways no one expects — but for some, it becomes the start of a new journey. In this week’s Inspirational Stories, we share two remarkable examples of people who turned their diagnosis into motivation to keep moving, keep living, and keep inspiring others.
1. Running Together
When Catherine Popp was diagnosed with early-onset Alzheimer’s at just 53, she and her husband Anthony made a decision — they wouldn’t let the diagnosis stop them from doing what they loved.
As passionate runners, the couple set themselves an extraordinary goal: to run a marathon in each of the 50 U.S. states. Through dedication, teamwork, and an unshakable bond, they achieved that dream in 2020.
But they didn’t stop there. In 2024, Catherine and Anthony reached another incredible milestone — completing half marathons in all 50 states. Catherine ran 43 of them herself, and for the final seven, Anthony pushed her in the custom-built “Catmobile”, ensuring they crossed every finish line together.
Their journey is a testament to love, perseverance, and the power of shared purpose — proving that even in the face of dementia, life can still be full of goals worth chasing.
Now, with his first Ironman behind him, Dan has his sights set on an even bigger goal — reaching the year 2040 with the same determination and fighting spirit.
2. Pedalling Forward
At age 50, Peter Berry received a diagnosis of early-onset dementia. Like many, he struggled in the year that followed — facing depression and uncertainty as he tried to adjust to life with the condition.
But Peter refused to let dementia define him. Drawing on his lifelong love of cycling, he decided to use his passion to make a difference.
In 2019, he rode 350 miles on a penny-farthing bicycle, raising over £4,000 for YoungDementia UK. The feat caught national attention — not just for the challenge itself, but for the spirit behind it. Last year, Peter went even further, completing 100 miles in a single day.
Now, more than 10 years after his diagnosis, Peter continues to inspire others by sharing his story at hospitals, universities, and community events. Through every mile and every talk, he shows that a diagnosis doesn’t have to be the end of ambition — it can be the beginning of something extraordinary.
A Message of Hope
Catherine, Anthony, and Peter each remind us that while dementia changes many things, it doesn’t take away the human drive to achieve, connect, and inspire. Whether it’s a marathon, a long ride, or simply a good day spent doing something you love, every step forward counts.
A Problem Shared is a Problem Halved
Every week, we share an honest story from a caregiver — the things most people are too afraid to say out loud.
This Week’s Caregiver Story-
“My mum was diagnosed with vascular dementia three years ago, and since then, she’s moved in with me.
I work part-time, and my children have recently left home, so I thought I’d be able to manage. But lately, I’ve been struggling with the constant repetition and night-time restlessness.
Mum often wakes up disoriented and insists she needs to ‘go home’. Sometimes it happens three or four times a night, and no matter how gently I explain, she doesn’t recognise where she is. I know she’s not doing it on purpose, but it breaks my heart… and I’m exhausted.
I feel guilty admitting it, but I’m starting to dread the evenings. I want to be patient, but I’m running out of energy and ideas.”
Harvey says:
Thank you for sharing your experience, it captures something that many caregivers go through but often feel unable to talk about: the emotional weight of exhaustion and guilt.
When someone with dementia becomes disoriented or repeatedly asks to go home, it’s usually because they’re searching for a sense of familiarity and comfort — not necessarily a physical place, but a time or feeling from their past that felt safe. It’s completely understandable that this would be distressing for both of you.
One gentle approach is to avoid correcting or contradicting your mum when she says she wants to go home. Instead, try to validate the feeling behind the words. You might say something like, “You miss home, don’t you? Tell me what you liked most about it.” Redirecting the conversation this way can sometimes ease her anxiety and make her feel heard.
If nights are becoming particularly difficult, you might also consider introducing a soothing evening routine — warm lighting, calming sounds, or a familiar blanket or scent. Small environmental cues can make a big difference. It’s also worth discussing her sleep patterns and medication with a GP, as sometimes simple adjustments can help.
Most importantly, please remember: your exhaustion is not a failure — it’s a sign that you’ve been giving your all for a long time. Seeking respite care, asking a family member to stay overnight, or contacting your local carers’ service for short breaks doesn’t mean you’re giving up; it means you’re caring for both of you.
You’re doing an incredible job in an incredibly hard situation. Compassion isn’t about never getting tired — it’s about showing up, even when you are.
Harvey
If something’s been on your heart lately, let us know. We read every word. Your voice could offer comfort to someone else navigating the same journey.