Table of Contents:
Quote of the Day
Interesting Stories This Week
A Patient’s Experience on Leqembi
Responding to YOU!
When you are a caregiver, you know that everyday you will touch a life or a life will touch yours.
Interesting Stories This Week:
Dr. Allison Aiello Discussion on Early Predictors of Alzheimer's Disease
Gill Measure to Expand Access to Alzheimer’s Treatment Signed by Governor
NewAmsterdam says cholesterol drug may also combat Alzheimer’s
New garden aims to support people with dementia
Rapid diagnosis of dementia
Dementia hub plan for patients and their families

A Patient’s Experience on Leqembi
When Chris Long and his wife, Janet, heard about the new Alzheimer’s drug Leqembi, they felt a rare sense of hope.
Chris became the very first patient at MUSC Health to receive the treatment, and 18 months later, he’s still going strong with his regular infusions.
Janet has seen the difference first-hand. She says Chris is still able to hold full conversations, enjoys playing golf, and continues spending time with friends. Chris himself says the biggest change has been in how he feels: more hopeful about the future.
His doctor agrees that the medication appears to be doing its job, slowing down the progression of symptoms and helping Chris remain stable.
Chris is now one of around 80 people receiving Leqembi infusions at MUSC Health.
Important things to know about Leqembi:
It’s currently only approved for people with early symptoms of Alzheimer’s.
Patients need to undergo genetic testing to check if it’s suitable for them.
There can be serious side effects, so medical guidance is essential.
Always discuss the risks and benefits with your neurologist before considering this treatment.
While Leqembi isn’t a cure, Chris’s story highlights how new treatments can offer not just clinical benefits, but also something just as vital… hope.

A Problem Shared is a Problem Halved
Every week, we share an honest story from a caregiver — the things most people are too afraid to say out loud.
This Week’s Caregiver Story-
"Every day I find myself Googling, reading articles, joining Facebook groups, searching for something new that might help my wife.
One source says coconut oil, another swears by a certain supplement, then someone else dismisses it completely.
I just want to do the best for her, but I feel like I’m drowning in conflicting advice. Am I doing enough? Or am I chasing false hope?"
Harvey says:
This is something so many carers experience, no matter where they are in the world. When someone you love is living with dementia, it’s only natural to search for answers, to hope that the next article, video, or post will hold a key that changes things.
The reality, though, is that the information out there is often overwhelming and contradictory. And that can leave you feeling exhausted, guilty, or even more uncertain than when you started.
Here are a few thoughts that may help:
Rely on trusted sources. Organisations like Alzheimer’s Research UK, the Alzheimer’s Society, and the Alzheimer’s Association in the US are reliable places to start. They share research that’s been carefully reviewed.
Focus on quality of life. While there isn’t yet a cure, small everyday things, nutritious food, gentle movement, meaningful activities, and social connection, can make a real difference.
Know you’re not failing. The fact that you’re searching, reading, and asking shows how deeply you care. There isn’t one “perfect” answer, only your ongoing effort to support your loved one.
Protect your own peace. It’s okay to step back from constant searching. Sometimes the greatest gift you can give is your presence, not the pressure to find a breakthrough.
Hope matters. But so does balance. You don’t have to have all the answers, what you’re already giving, day in and day out, is love. And that’s more powerful than any headline.
Warmly,
Harvey
If something’s been on your heart lately, let us know. We read every word. Your voice could offer comfort to someone else navigating the same journey.