All About Alzheimer's Newsletter- Monday 21st April 2025

Welcome to your weekly roundup of insights and stories from All About Alzheimer's.

We strive to bring you the most valuable and relevant information to assist you on your journey as a caregiver.

Table of Contents:

1. Quote of the Day

2. Interesting Stories This Week

3. Caregiver Support Program WAITLIST

4. Alzheimer’s Clinic Provides Time and Hope

5. Feedback & Engagement

Interesting Stories This Week:

New research to use focused ultrasound technology to address cognitive decline in Lewy body dementia patients

Study names 11 'strong predictors' for dementia later in life - how to lower risk

Scheme using nostalgic products to help people with dementia faces a funding crisis

New study finds people with this particular strength are more likely to get dementia

Dementia diagnosis rate remains below pre-pandemic levels

We Can Offer More Support to You!

If you’re supporting someone with Alzheimer’s or dementia, we know how overwhelming and isolating that journey can feel.

That’s why we’re launching two initiatives designed specifically for caregivers like you, and we’d love for you to be part of one (or both), if they feel like the right fit.

1. The Alzheimer’s & Dementia Virtual Care Conference

A one-day online event packed with:

• Inspiring stories from fellow caregivers

• Practical tools to help with day-to-day care

• Expert guidance in a welcoming, understanding space

2. Caregiver Training + Support Group Waitlist

An ongoing support programme including:

• Expert-led training, used in 35 countries

• A private carer support group with monthly activities

• Tips to improve communication, reduce burnout, and reconnect with yourself

If either of these sound like they’d help you feel more equipped, less alone, and better supported, we’d love to have you join us.

And if you’ve already signed up… thank you! You’re in.

Alzheimer’s Clinic Provides Time and Hope

Alzheimer's disease, a formidable adversary in the realm of neurological disorders, has seen a breakthrough with the FDA's approval of Lecanemab in early 2023. This marks a significant milestone as Lecanemab targets the disease's underlying processes, offering not just treatment but a ray of hope for patients and their families.

Understanding Lecanemab

Lecanemab is an innovative treatment that attacks the beta-amyloid plaques in the brain, which are hallmark indicators of Alzheimer's. Administered through bi-weekly infusions, it represents a commitment to managing the disease more actively. Clinical trials have shown that Lecanemab can reduce these plaques and slow cognitive decline by 27% over 18 months.

A Careful Approach

While it brings much-needed optimism, Lecanemab is not without risks. The potential for serious side effects, such as brain swelling or bleeding, means that patients must undergo rigorous screening before treatment. Those who qualify continue to be closely monitored with regular MRI scans to manage any complications that arise.

Wider Impact and Acceptance

Initially granted accelerated approval by the FDA, Lecanemab's journey to broader acceptance saw a pivotal moment when its status was upgraded to traditional approval, prompting Medicare and other insurers to cover the treatment. This change has significantly broadened access to Lecanemab, making it a viable option for many more patients.

The Role of Public Awareness

The launch of Lecanemab is not just a medical victory; it's a societal one. Duke University Hospital's adoption of the drug, becoming the first in North Carolina to offer it, underscores the potential of dedicated Alzheimer's clinics in transforming patient care. By treating over 150 patients bi-weekly, the program not only addresses the medical needs but also plays a crucial role in destigmatizing the condition and fostering community awareness.

Looking Forward

The story of Lecanemab is reminiscent of the advances seen in cancer treatment, where increased public awareness and funding have led to substantial progress. It's a clarion call for similar momentum in Alzheimer's research and treatment, advocating for a future where this disease, too, can be effectively managed or even cured.

We Value Your Feedback

Did you find the insights in the ‘Alzheimer’s Lifeline’ report helpful?

We’re always looking to better support caregivers like you and could really use your help to understand how.

Would you mind taking a quick survey? It’ll just take a few minutes, and your answers will help us shape our support to better suit your needs.