All About Alzheimer's Newsletter- Monday 23rd June 2025

We would like to share our Caregiver Training & Support Group, offering you ongoing, expert-led support built specifically for the challenges of dementia care.

What’s included:

This programme will equip you with strategies not only to care better for your loved one, but also to take better care of yourself.

And if you’ve already signed up… thank you! You’re in.

The FDA in 2023 approved Lecanemab which showed it can modestly slow its progression.

It was met with enthusiasm as it represented the first medication of its kind to influence the disease.

However the side effects – brain swelling and bleeding – emerged during the clinical trials that left some patients and doctors hesitant about the treatment.

In a recent study researchers at Washington University School of Medicine in St Louis set out to study the adverse events associated with Lecanemab treatment in their clinic patients.

They found that significant adverse effects were rare and manageable.

Consistent with the trials, researchers found that only 1% of patients experienced severe side effects that required hospitalisation.

Patients in the earliest stages of Alzheimer’s with very mild symptoms experienced the lowest risk of complications [1.8%] compared to 27% of patients with mild Alzheimer’s.

Hesitation and avoidance can lead patients to delay treatment which, in turn, increase the risk of side effects.

Patients receive the medication via infusion every 2 weeks.

In addition, they are regularly monitored with sophisticated imaging which can detect bleeding or swelling with greater sensitivity.

The study showed most patients on Lecanemab tolerated the drug well.

Every week, we hear powerful, honest, and deeply moving insights from caregivers like you- and we don’t want them to sit unseen.

In our new “This Week’s Caregiver Story” section, we’ll be sharing a real, anonymous quote from someone in our community, followed by a compassionate response from Harvey, our lead dementia care expert.

Whether it’s frustration, fear, grief or resilience, your words are never wasted.

This feeling is incredibly common, and it's one of the most painful parts of being a caregiver… mourning someone who’s still physically here. Dementia changes relationships profoundly, often turning partnerships into care arrangements, and that emotional shift can be devastating.

But you are not alone in this.

While we can’t stop the condition, we can adapt how we connect. That’s where structured approaches like iCST (Individual Cognitive Stimulation Therapy) can help. They offer small but meaningful ways to reintroduce moments of joy, humour, and shared experience, not just care tasks.

You are still in there together. It just takes new tools and a different kind of patience to find those moments again.

Harvey

If something’s been on your heart lately, let us know. We read every word. Your voice could offer comfort to someone else navigating the same journey.

Caring for a loved one with Alzheimer’s or dementia can be overwhelming, but you don’t have to face it alone. We’re launching Inner Circle, an expert-led support programme designed to give caregivers like you rapid access to guidance, reassurance, and a supportive small-group environment.

Choose from 3 membership tiers to suit your needs, whether you want monthly peace of mind or weekly advice to manage symptoms in real time. From handling difficult behaviours to preventing burnout, you’ll gain expert insights, confidence, and a caring community.

📝 Spots are limited- join the waitlist now to be the first to hear when we open the doors.