All About Alzheimer's Newsletter- Monday 26th May 2025

Table of Contents:

1. Quote of the Day

2. Interesting Stories This Week

3. Caregiver Support Program WAITLIST

4. Would You Want to Know Your Alzheimer’s Risk?

5. Responding to YOU!

6. Personalised Support for Dementia Caregivers WAITLIST

Interesting Stories This Week:

Experimental Alzheimer’s Vaccine Shows Promise

Why an active social life is a secret weapon in the fight against dementia

Neurologist says common drug millions take increases dementia risk by 33 per cent

Jay Leno says caring for his wife with dementia is challenging, but he took 'a vow' to live up to

The subtle clue in your EYE that could mean you'll get dementia as young as 45

Caregiver Training & Support Group

Caring for a loved one with Alzheimer’s can be isolating, exhausting, and emotionally heavy, but it doesn’t have to be faced alone.

We’re proud to be launching a Caregiver Training & Support Group, offering you ongoing, expert-led support built specifically for the challenges of dementia care.

What’s included:

• Expert-Led Training: Based on a programme used in 35 countries, designed to help carers improve communication, manage challenging behaviours, and build stronger emotional bonds.

• Supportive Community: Become part of a private group of caregivers who get it, a place for encouragement, sharing, and inspiration.

• Monthly Activities & Resources: New exercises and practical tools each month to help you stay motivated, connected, and resilient.

This programme will equip you with strategies not only to care better for your loved one, but also to take better care of yourself.

And if you’ve already signed up… thank you! You’re in.

Would You Want to Know Your Alzheimer’s Risk?

Prefer to listen? This week’s article is also available as a podcast episode.

Catch All About Alzheimer’s wherever you get your podcasts. Great for a walk, a quiet moment, or when reading feels too much.

In a recent report from the Alzheimer’s Association, it has become apparent that people have a growing interest in testing, diagnosis and treatment of Alzheimer’s.

More than 7 million people in the US are now living with Alzheimer’s.

The survey found the following:

• 79% would want to know if they had the disease before symptoms began to interfere with their daily activities

• 80% said they would ask a doctor to be tested, rather than waiting to be offered a test

• 91% said they’d want a blood biomarker test if one were available [most people didn’t know that several blood tests already on the market can indicate the presence of amyloid plaques in the brain]

• 92% said if diagnosed with Alzheimer’s, they would want a drug to slow down the progression of the disease

• 58% said they would take an Alzheimer’s drug even if it had a moderate or high risk of side effects

• 83% said if diagnosed, they would be open to participating in a clinical trial experiment to slow or cure it

• 81% expect that in the next decade, treatments will arrive that can halt the progression

People are becoming less afraid and more proactive.

It’s now easier to find out.

A simple blood test is now available compared to the spinal tap treatment.

The arrival of drug treatments for people in the early stages gives people the reason to find out early.

However, there are dangers.

There are protections for people who learn their genetic information, but currently, there are no protections for learning about their cognition.

A Problem Shared is a Problem Halved

Every week, we hear powerful, honest, and deeply moving insights from caregivers like you- and we don’t want them to sit unseen.

In our new “This Week’s Caregiver Story” section, we’ll be sharing a real, anonymous quote from someone in our community, followed by a compassionate response from Harvey, our lead dementia care expert.

Whether it’s frustration, fear, grief or resilience, your words are never wasted.

This Week’s Caregiver Story

Harvey says:

Thank you for sharing something so raw and honest. What you’ve said will resonate deeply with many others. When you’ve spent over five decades with someone, it’s not just love, it’s identity, partnership, shared routines, inside jokes, memories in every corner of your life.

Dementia doesn’t just change the person you love, it changes the shape of your relationship. And that loneliness, even while they’re still with you physically, can feel overwhelming.

It’s so important to acknowledge your needs too. You’re not just a caregiver, you’re still a spouse, a human being, someone with hopes, desires, and the right to joy. It’s OK to grieve the parts of life you’ve lost. And it’s OK to want time for yourself... even a few moments a day to breathe, remember who you are, or do something small just for you.

You’re not selfish for needing that. You’re wise. And most importantly, you’re not alone. Our community is here for you.

Want to share your story?

If something’s been on your heart lately, let us know. We read every word. Your voice could offer comfort to someone else navigating the same journey.

Join the Waitlist for Inner Circle: Personalised Support for Dementia Caregivers

Caring for a loved one with Alzheimer’s or dementia can be overwhelming, but you don’t have to face it alone. We’re launching Inner Circle, an expert-led support programme designed to give caregivers like you rapid access to guidance, reassurance, and a supportive small-group environment.

Choose from 3 membership tiers to suit your needs, whether you want monthly peace of mind or weekly advice to manage symptoms in real time. From handling difficult behaviours to preventing burnout, you’ll gain expert insights, confidence, and a caring community.

📝 Spots are limited- join the waitlist now to be the first to hear when we open the doors.