All About Alzheimer's Newsletter- Monday 5th May 2025

When do you tell people you have Alzheimer’s?

May 05, 2025

Welcome to your weekly roundup of insights and stories from All About Alzheimer's.

We strive to bring you the most valuable and relevant information to assist you on your journey as a caregiver.

Table of Contents:

  1. Quote of the Day

  2. Interesting Stories This Week

  3. Caregiver Support Program WAITLIST

  4. Alzheimer’s Clinic Provides Time and Hope

  5. Feedback & Engagement

  6. The Alzheimer’s & Dementia Virtual Care Conference WAITLIST

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Doctors diagnose, nurses heal and caregivers make sense of it all.

Brett H Lewis

Interesting Stories This Week:

Brain Inflammation Linked to Dementia Risk in Parkinson's Disease

Lord John Prescott’s son to run London Marathon for Alzheimer’s Research UK

To Reduce Dementia Risk, Treat High Blood Pressure

'Give us a helping hand', urges dementia centre

Commission authorises medicine for treatment of early Alzheimer’s disease

Caregiver Training & Support Group

Caring for a loved one with Alzheimer’s can be isolating, exhausting, and emotionally heavy, but it doesn’t have to be faced alone.

We’re proud to be launching a Caregiver Training & Support Group, offering you ongoing, expert-led support built specifically for the challenges of dementia care.

What’s included:

  • Expert-Led Training: Based on a programme used in 35 countries, designed to help carers improve communication, manage challenging behaviours, and build stronger emotional bonds.

  • Supportive Community: Become part of a private group of caregivers who get it, a place for encouragement, sharing, and inspiration.

  • Monthly Activities & Resources: New exercises and practical tools each month to help you stay motivated, connected, and resilient.

This programme will equip you with strategies not only to care better for your loved one, but also to take better care of yourself.

And if you’ve already signed up… thank you! You’re in.

When do you tell people you have Alzheimer’s?

When and how do you reveal your news that you have Alzheimer’s?

Because of the new advances in detecting Alzheimer’s early, many people are being forced to think about this complex question.

These are difficult decisions to make.

Sometimes, the reaction amongst family and friends will be supportive, but often this isn’t the case.

There are no fixed rules, but here are some suggestions:

  1. There needs to be a clear diagnosis based on expert evaluation.

  2. The timing and audience for a disclosure should depend on whether it helps the affected person feel normalised and supported.

  3. Describe the current state, not what the future holds.

  4. The person disclosing it must be able to explain it accurately.

Whoever you inform, make sure your message is at the level of understanding and involvement.

How you tell your friends will be different if you are talking to teenage children.

Telling your employer is tricky, as they will worry about your safety and their liability.

There are a few important principles for someone who is the recipient of the news:

  1. Listen…it’s not about you.

  2. Don’t offer your theories….leave it to the experts.

  3. Focus on their strengths.

  4. Carry on seeing them as normal….don’t abandon them.

  5. Ask what support they can offer.

We Value Your Feedback

Did you find the insights in the ‘Alzheimer’s Lifeline’ report helpful?

We’re always looking to better support caregivers like you and could really use your help to understand how.

Would you mind taking a quick survey? It’ll just take a few minutes, and your answers will help us shape our support to better suit your needs.

Alzheimer’s & Dementia Virtual Care Conference

If you’re caring for someone with Alzheimer’s or another form of dementia, you don’t have to figure out the journey alone.

We’re excited to invite you to join the waitlist for our Alzheimer’s & Dementia Virtual Care Conference, a one-day online event created just for caregivers like you.

Here’s what you can expect:

  • Inspiring Personal Stories: Hear from real caregivers who understand what you're going through and share their lessons and encouragement.

  • Practical Tools & Strategies: Get useful techniques to help with everyday challenges like communication, routine, and self-care.

  • Expert Guidance: Learn from leading dementia care specialists in a supportive, welcoming environment that understands your reality.

This conference is designed to help you feel more confident, more connected, and more supported.

And if you’ve already signed up… thank you! You’re in.